39 thoughts on “Canadian families stunned by 3,000% increase in price of life-saving drug – Health

  1. geniice March 13, 2018 / 9:53 pm

    Okey the active component is Cysteamine which looks like it should be extreamly cheap to make.

    And indeed Sigma Aldrich (usually the single most expensive way to buy chemicals) are selling pharama grade stuff for £16.10 per gram (if you buy 100 grams).

    Now in fairness the new stuff does have a slow release mechanism which is handy but I feel its one of those cases where the advance may not be worth paying for.

  2. chewy4x4 March 13, 2018 / 9:53 pm

    Feels like you’re coming to America.

  3. hrafn42 March 13, 2018 / 9:53 pm

    How is it “a breakthrough medicine” (supposedly justifying the massive premium) when another company was already selling it for on thirtieth the price?

  4. Spectrumancer March 13, 2018 / 9:53 pm

    > Now Health Canada is telling doctors and patients they can no longer access Cystagon unless the doctor can provide a valid medical reason,

    Is “People will literally die” not a valid medical reason?

  5. Archer1949 March 13, 2018 / 9:53 pm

    Big Pharma needs to be smashed into a million pieces and scattered to the winds.

  6. stringbeenus March 13, 2018 / 9:53 pm

    We’ve always talked about the free market but the free market has honestly lead to this sick regulatory capture of every single sector.

    I dont know how this is going to change and its frightening

  7. bromat77 March 13, 2018 / 9:53 pm

    You’ve been Shkrelied!

  8. PepperPickingPeter March 13, 2018 / 9:53 pm

    If they are going to kill your daughter or son over money… why not kill those greedy bastards in exhange? Isn’t that ethical?

  9. justkjfrost March 13, 2018 / 9:53 pm

    > Especially when they’ve been happily using an older version of the same drug that costs a fraction of the price.

    > The new form of the drug licensed in Canada, called Procysbi (cysteamine delayed-release), contains the same active ingredient as Cystagon.

    > Cystagon cost $10,000 a year for Gabbie and it was covered by the Ontario government. Strauss has been told Procysbi will cost $320,000 a year, every year, for the rest of his daughter’s life.


    but to be honest the whole new price thing look like a fraud scheme to embezzle gov funds to me

  10. toadkiller March 13, 2018 / 9:53 pm

    >It’s estimated that cystinosis affects fewer than 100 patients in Canada.

    Aaaand that right there is the reason. The old drug made only $1m in revenue. This new one will make $30m. Still pretty low for pharmaceuticals but I guess they take what they can get.

  11. jonas_h March 13, 2018 / 9:53 pm

    This is where the real use of darknet marketplaces comes in. So people can afford not to die.

  12. Waterslicker86 March 13, 2018 / 9:53 pm

    This is disgusting…and something has to be done about this. So…what can we do? How do we prevent Big Pharma from committing atrocities like this in our countries? Do we need to have government / kickstarter funded competing drug companies to lower the prices? Do we need to add some type of legal clause that makes it so you can only mark up a lifesaving drug or treatment by a certain factor? What is the most realistic option here?

  13. YarraYarra March 13, 2018 / 9:53 pm

    Horizon Pharma sounds like the sort of company that should be burnt to the ground whilst the bodies of it’s executives and owners are hoisted up on scaffolds as a warning to all others who profit from the sick and the despairing.

  14. boycottlife March 13, 2018 / 9:53 pm

    Efficiency of the free market at its best. Let’s de-regulate everything! Paradise Awaits.

  15. badhed March 13, 2018 / 9:53 pm

    Canadian healthcare is such a mess.

  16. thesecretsofnothing March 13, 2018 / 9:53 pm

    I thought Canadians didn’t pay for health-care? Isn’t this an issue the government would take up if they’re paying the bills?

  17. Whiskeyjoel March 13, 2018 / 9:53 pm

    Sigh…so tired of saying this. Our healthcare is not “free”, it’s subsidized. No, we don’t pay for every little sheet of toilet paper we use in a hospital visit, because we essentially are always paying to cover hospital costs, through the taxes we pay and our medical service premiums. When it comes to drugs, a lot of things aren’t covered by our basic medical plan, or if they are, the coverage is minimal. For higher levels of coverage, we still need extended health benefits (insurance) just like you ‘muricans.

  18. torpedoguy March 13, 2018 / 9:53 pm

    The research was paid for both versions of the drug by patients families and the Cystinosis Research Foundation. Not by Horizon.

    *Something* tells me these aren’t the drug dealers Trump was talking about giving the death penalty to.

  19. Dr9 March 13, 2018 / 9:53 pm

    The collapse is coming. Way too many seniors triple dipping into public pensions, taking old age benefits, and socialized health care benefits.

    The wealthiest generation is being subsidized by all the others, and the collective lie is that somehow this was sustainable.

    What? Your pension is underfunded? Just re-define the accounting so the future obligations magically disappear. Only they don’t.

  20. AmericCanuck March 13, 2018 / 9:53 pm

    I wonder if it has anything to do with the fact that in Ontario, drugs are now paid for by the province for people under 25 and over 65.

  21. insertmadeupnamehere March 13, 2018 / 9:53 pm

    Dumb question: if Canadian health care is free, do they have to pay for their own RXs?

  22. Gr33nT1g3r March 13, 2018 / 9:53 pm

    It’s almost like “the market will regulate itself” is a huge lie, specially for basic utilities and health care.

  23. NotObviouslyARobot March 13, 2018 / 9:53 pm

    Pass some statutes capping price increases. I mean, if the Canadian government controls healthcare, it should be easy

  24. reddymcwoody March 13, 2018 / 9:53 pm


  25. LittleGeppetto March 13, 2018 / 9:53 pm

    Again, yet another item that needs to be free to the people provided by their government.

  26. MulderD March 13, 2018 / 9:53 pm

    America Jr all grows up.

  27. PurpleSailor March 13, 2018 / 9:53 pm

    Sounds like corporate Canadian pharmalogical companies have been talking to their American counterparts on how to screw over qthe people. Sorry Canada 🙁

  28. BakinBaconBro March 13, 2018 / 9:53 pm

    This is rather sensationalist headline. While the new formulation comes at quite the markup, the company that produces the new formulation (intake every 12 hours) will continue to offer the older drug (intake every 6 hours) at its current price for the next 3 months. This will allow the provinces time to fully approve the original formulation. Once that is done the price will NOT increase for the original formulation, and the newer formulation will drop significantly, at or below a 200% markup (since half the pills are required).

  29. youpeopleareannoying March 13, 2018 / 9:53 pm

    Ummm I thought Canadian healthcare was the best ever and that it was free?

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